TO MY FELLOW EDS WARRIORS

To my fellow EDS Warriors,

Here is to every single thing you have had to endure:

Every bit of blood, sweat, and tears, the loss of your body, and anything you knew.

The endless appointments, the calls, the scans, the reactions, the surgeries, the hospital and ambulance trips, the not knowing, the fighting for your life, the agony of being dismissed when you were desperately in need of care and treatment, the answers not given, the care not received, the abuse you possibly went through.

Here is to being left to pull what felt like shards of glass out of your skin dripping with blood that only you can see: every moment of trauma, grief, abandonment, accusations, disbelief, mistreatment, depression, fear, and uncertainty.

Here is to every second of living in the gritty reality of what was never in your head but running through every single part of your DNA.

Here is to not giving a F about anything anymore that interferes with YOUR wellbeing, with protecting your body, and honoring your soul.

Here is to celebrating every moment that you can be alive, are not in pain, or still are and living anyway.

Here is to doing anything YOU want to do, refusing what you do not feel comfortable with, and finally being at peace with any medical or life decisions.

Here is to finally living your life however you can, want, and are able to live it.

Here is to you: the brave, the weak, the angry, the sad, the joyful, the ones on fire, the ones hurting, the ones deserving.

I am you. I am for you. I stand with you and I will always have your back.

All my love and strength,

- RKD

05-01-25