Today for the first time in two years since my major brain injury, seizures, and FND significantly progressing, I was able to twirl in a dress without falling all the way over.
I went through so many seizures and debilitating paralysis and weakness constantly I wondered if I ever would be able to again.
Even though I had a seizure and was too weak the rest of the day to do much, lately I have been able to still regain more functioning and have less pain and seizures in general with all of my many conditions and diseases for the first time in years. I am nervous for the upcoming months due to those being the most brutal for me with pain but I hope to be able to still manage.
In one month I celebrate my first life anniversary: one year after my Dad carried me into the hospital completely limp and unresponsive, and days later after being transferred by ambulance again, I went into another major seizure with a dangerous heart rate and lost consciousness before waking up still unresponsive surrounded by the emergency department telling me I was definitely going to the ICU.
What a journey this is...I love every person who has been and continues to be there for me.
- RKD
07-14-25